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Offline Bugjune  
#1 Posted : Thursday, June 24, 2010 2:16:15 PM(UTC)
Rank: Advanced Member

Joined: 6/29/2009(UTC)
Posts: 4,633
Woman
Location: The leaf I am sitting on
I apologize for the endless SAGA here! My husband is ready to run screaming through a brick wall. But I have just developed ONE MORE maddening, uncomfortable condition as a result of the staph infection I got after my MixTo facial resurfacing nearly six weeks ago.

Initially, I thought I'd brought my rash on by applying self-tanner on my body and some scalp nourishing treatment on my scalp a week ago. Within 48 hours, I'd developed an itchy, bumpy, red rash on my lower back and on my scalp. I posted pix of this in my album at MMH:

http://www.makemeheal.co...-mixto-procedure-a11333
Password: BugsMixTo

I self-treated with antihistamine pills and OTC cortisone for several days before going in to see my GP physician on Tuesday. He thought it was possible the self-tanner was a trigger, as it was left on for 24 hours two days in a row. He advised Benadryl at night and the OTC cortisone during the day. Well that did squat-diddly. Instead, day by day the rash just marched forward to cover more and more territory.

By this morning, the rash looked almost as raised as hives (could I have been allergic to Benadryl?!); it had spread to my groin - yes even DOWN THERE, making it painful to pee or walk, my BUTT (can't even sit down without discomfort), all limbs from neck to toes, and covered my back with a truly ugly carpet of the rash. I'd had it.

Thanks to the MANY concerned folks here who highly recommended that I pursue my recent "rash" with a qualified specialist, I heeded their advice and got in to see a dermatologist this afternoon. He was not convinced that my rash was due to the self-tanner, but he did say that was likely one of possibly several triggers that my body just over-reacted to. He said that in fact, MOST patients who have had a staph infection develop atopic dermatitis at some point. These flare-ups can recur, so I will have to really pay attention to what I'm eating, my stress level (what stress?!), and how I treat my skin.

(Those of a nerd-ish bent can read more about atopic dermatitis at: http://www.niams.nih.gov..._Dermatitis/default.asp)

I got a shot of Kenalog, also known as triamcinolone, a steroid; plus will get a prescription filled for a stronger cortisone cream to put on the more stubborn "spots" - if WHOLE BODY could be defined as a "SPOT". If my condition doesn't improve by Monday, I will return to the dermatologist, and he will put me on a course of Prednisone. The reason why NO antihistamine pill worked for my rash is because the cause is not histamine-related (i.e., due to allergies), it's an immune system working overtime like a five-alarm fire every time a match is struck.

When I told the dermatologist about the whole sequence of events: staph infection, huge cankles, peeling skin, odd breakouts, now this rash, I kidded, "What's next? Am I gonna lose my hair?" He didn't even snicker. He said, "If you do, that'll happen at about 2-3 months post."

The bottom line here is that at SIX weeks post-MixTo, it ain't over yet. And here I thought I'd have glowing skin in 5 short days and be a poster-gal for MixTo. How could I be so misled? I am still focusing ALL my positive energy on a turnaround - or at least SOME improvement - by tomorrow. But I am doggedly determined to pursue every avenue of health care till I nail the lid on this coffin once and for all.

Edited by user Friday, June 25, 2010 8:15:42 AM(UTC)  | Reason: Not specified

I bug you.

UserPostedImage
Offline MissJ  
#2 Posted : Thursday, June 24, 2010 3:28:55 PM(UTC)
Rank: Administration

Joined: 5/14/2008(UTC)
Posts: 26,741
Although I said prior not to write to your PS asking for a refund. (Refunds often resolve to legal matters if you directly ask for one), I have a new approach: Document with TEUTONIC PRECISION all of the sequellae to this laser treatment and also your emotional 'feelings' having to ENDURE this as a consequence of your PS not giving you prophylactic anti-biotics before hand and further misdiagnosing what you had. Write to him from the perspective that "he cares" (he might not and that will come out in his response) and you are just 'following up' with the details of your experience because you feel it's something he WANTS to know about. Like act AS IF you are 'assuming' he cares and wants to know your feelings about the sequellae you had. Like give him a 'non defensive' chance to express he is sorry for that and to offer to help (via compensation). See HOW he responds
Miss J. Seeing eye companion to the aesthetically blind since 1998.


Offline Bugjune  
#3 Posted : Thursday, June 24, 2010 4:24:21 PM(UTC)
Rank: Advanced Member

Joined: 6/29/2009(UTC)
Posts: 4,633
Woman
Location: The leaf I am sitting on
Yes MissJ, you and I are in agreement here! I guess I'm going to have to wait maybe 4-6 mos to BE SURE that all the follow-on complications are - dare I say? - OVER.

I am indeed documenting all these conditions, not only with a calendar and written diary, but with photos taken. Geez. Not how I wanted to spend my summer "vacation", but now I'm damned determined to get MY DUE.

PLEASE keep your fingers crossed that the Kenalog shot makes a difference! I have only ONE bum, and I can not even SIT in comfort right now. I'm really going to have to try some meditation and mind-altering exercises to stay focused on a positive outcome.



=========================================
MissJ wrote:
Although I said prior not to write to your PS asking for a refund. (Refunds often resolve to legal matters if you directly ask for one), I have a new approach: Document with TEUTONIC PRECISION all of the sequellae to this laser treatment and also your emotional 'feelings' having to ENDURE this as a consequence of your PS not giving you prophylactic anti-biotics before hand and further misdiagnosing what you had. Write to him from the perspective that "he cares" (he might not and that will come out in his response) and you are just 'following up' with the details of your experience because you feel it's something he WANTS to know about. Like act AS IF you are 'assuming' he cares and wants to know your feelings about the sequellae you had. Like give him a 'non defensive' chance to express he is sorry for that and to offer to help (via compensation). See HOW he responds
I bug you.

UserPostedImage
Offline MissJ  
#4 Posted : Thursday, June 24, 2010 5:06:23 PM(UTC)
Rank: Administration

Joined: 5/14/2008(UTC)
Posts: 26,741
Maybe take an Aveno colloidal oatmeal bath to sooth.
Miss J. Seeing eye companion to the aesthetically blind since 1998.


Offline Sarah W  
#5 Posted : Thursday, June 24, 2010 6:58:50 PM(UTC)
Rank: Advanced Member

Joined: 6/4/2008(UTC)
Posts: 9,224
Woman
Bujune. I sympathise with all that has gone on and am shocked by what has happened. but to be fair it seems that you have a history of skin problems. if I remember correctly. Do you suppose that maybe that might be part of all this? Granted you had an undiagnosed staph infection that is unforgivable in the circumstances but do you think your tendency for skin problems is something to do with this as well? I only ask as I have a similar problem and not all can be blamed on the procedure. I get skin problems under stress and always have since I was a little girl. D'you suppose some of this dreadful stress you have been under my be a contributing factor? Just a thought....
Offline Page  
#6 Posted : Friday, June 25, 2010 12:40:50 AM(UTC)
Rank: Advanced Member

Joined: 6/10/2008(UTC)
Posts: 502
Location: Michigan
Oh Bug...I am so sorry you are having such a touth time...completeley friggin unfair!! What is really scary is that with all of our "so called" mass knowledge and careful consideration, crap still goes wrong! I'm trying to send some positive thoughts and energy your way...for what its worth!
Offline Amber  
#7 Posted : Friday, June 25, 2010 12:59:57 AM(UTC)
Rank: Advanced Member

Joined: 7/3/2008(UTC)
Posts: 264
Location: UK
Fingers, toes... even eyes crossed that the Kenalog shot makes a difference. I'm so sorry it's got so bad.

Clever advice from Miss J. I guess you'll have to wait til you can sit tho, to draft that letter.

These are actually official cyber healing vibes:

~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~
Offline DCNGA  
#8 Posted : Friday, June 25, 2010 2:20:47 AM(UTC)
Rank: Advanced Member

Joined: 9/18/2008(UTC)
Posts: 7,139
Woman
JMO, but I think the underlying problem was the lack of prophylactic antibiotics which led to the development of the staph. This was complicated by a non-specialist in the field trying to treat (on more than one instance over the course of this saga) a malady or maladies that were out of his field of expertise.

I do not think any amount of stress caused the staph which is the original problem. I do think stress can exacerbate the problems but I do not think any previous skin problems could have led to this awful outcome. IMO, it all relates to the doctor's below the "standard of care" approach from the get-go,even pre-procedure.

JMHO.
Offline Bugjune  
#9 Posted : Friday, June 25, 2010 3:39:54 AM(UTC)
Rank: Advanced Member

Joined: 6/29/2009(UTC)
Posts: 4,633
Woman
Location: The leaf I am sitting on
Yes, both you and DCNGA are absolutely right here. Had I gotten the antibiotic BEFORE the MixTo, it's more than likely I would never have developed the staph infection. Stress won't bring on a staph infection, but it WILL bring on skin problems. As a result of the staph, I had to take the antibiotics; and the combination of extensive lasering, staph and antibiotic has thrown my immune system out of balance. That's it in a nutshell.

I do know that skin/allergy problems run in my family. My dad used to take injections regularly as he was allergic to dust; my mom has psoriasis, so SKIN is the buzzword here. I had a terrible contact dermatitis rash in high school decades ago that was so bad I had the exact treatment: kenalog shot and stronger concentration of cortisone to apply. And during pollen season, I will sometimes get a bumpy rash that can come and go over 6 weeks! Triggers. That's what I have to identify and avoid.

It's just going to take a bit of TIME. While I am prone to skin problems (and live in a very dry area, too), I've been on a roller coaster of stress for 6 weeks now. What makes it tough is that I felt fine enough 3 weeks ago to get my hair cut 'n colored ... and that dye could also have been a trigger, beginning with the neck/chest rash. Then I felt good enough to go for daily walks and get back to my exercise at the gym, and even put self-tanner on - till this body rash developed a week ago. So it's been one baby step forward, and three leaps backward for 6 weeks.

My neighbor said she had a case of hives that lasted 6 months! She had to carry a syringe of epinephrine around with her, because her throat would actually begin to close up. So I contemplate my current situation, sipping a cuppa green (ack!) tea, and still remain positive for my situation.

THANKS FOR ALL THE POSITIVE VIBES!!!! You guys are amazing, and it's no wonder I am permanently attached to this board throughout the day. Great advice and perspectives, too.

========================================
Sarah W wrote:
Bujune. I sympathise with all that has gone on and am shocked by what has happened. but to be fair it seems that you have a history of skin problems. if I remember correctly. Do you suppose that maybe that might be part of all this? Granted you had an undiagnosed staph infection that is unforgivable in the circumstances but do you think your tendency for skin problems is something to do with this as well? I only ask as I have a similar problem and not all can be blamed on the procedure. I get skin problems under stress and always have since I was a little girl. D'you suppose some of this dreadful stress you have been under my be a contributing factor? Just a thought....
I bug you.

UserPostedImage
Offline kk25  
#10 Posted : Friday, June 25, 2010 4:18:31 AM(UTC)
Rank: Advanced Member

Joined: 7/11/2008(UTC)
Posts: 7,108
Bug, I feel truly sorry that you are going through that, I hope that you can overcome it soon.


I think that if you take vitamin D, it can help you as (vitamin D helps with inflammation.
and dont worry you wont get hair loss, but in case that you notice any spots on your scalp run to your derm
and ask him to do steroid shots in the area(that will stop it).



avoid drinking or taking anything with stimulants, because they may make more nervous(stressed) and at this moment you want to keep your self as relaxed as possible because High levels of stress can trigger autoimmune problems.
Offline Shaz  
#11 Posted : Friday, June 25, 2010 4:51:30 AM(UTC)
Rank: Advanced Member

Joined: 5/15/2008(UTC)
Posts: 916
Woman
Location: Bar, Restaurant at the End of the Universe
Can somebody up there give Bug a break GEEZ. Hang in there, sweetie...this will eventually calm down. Adding healing vibes, too.
Pay no attention to Caesar. Caesar doesn’t have the slightest idea what’s really going on. Kurt Vonnegut

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Offline surfgirl  
#12 Posted : Friday, June 25, 2010 6:23:59 AM(UTC)
Rank: Member

Joined: 7/16/2008(UTC)
Posts: 107
Bugjune wrote:
What makes it tough is that I felt fine enough 3 weeks ago to get my hair cut 'n colored ... and that dye could also have been a trigger, beginning with the neck/chest rash. Then I felt good enough to go for daily walks and get back to my exercise at the gym, and even put self-tanner on - till this body rash developed a week ago. So it's been one baby step forward, and three leaps backward for 6 weeks.


sorry this is still going on. if the kenalog shot does not take care of this, then imho, i'd go in to a specialist and get tested for staph. get a culture taken from inside the nose, and also culture anything on the skin that can be cultured. suggesting this because it seems it is at least a possibility that the staph has not been taken care of. it is possible that the iv meds and the oral keflex reduced the staph and allowed you to feel better for a while, but that it wasn't completely taken care of, and began to grow again, thus making you feel worse again and present with new symptoms. getting the cultures will not hurt anything, if they show no presence of staph that requires additional antibiotics, then at least that has been ruled out. but if staph requiring additional antibiotics is found (and list of which specific antibiotics will treat the specefic type present), well then it can be treated.

thing is, if it is not staph, and you're just having an autoimmune issue at this point, then the steroids should help (because they can suppress the immune system). but, if staph is causing this, then steroids could make the situation worse (because they can suppress the immune system). and, since you've recently had staph, it seems a bit surprising that they are not testing you just to make sure they know what they are trying to treat.

staph is everywhere. bascially everyone has some form of it on their skin and in their bodies. but over time, types of staph that can periodically require antibiotic treatment have begun to colonize an increasing percentage of the population. in those cases, it can often be found in the nose (and other places). it is possible that you were exposed to staph after your laser treatment and that's where the infection came from. it is also possible that you may have already been a carrier (which is not to say it would have been your "fault" just want to be clear on that)and that the procedure allowed it to spread and worsen because the outer layer of skin was removed. regardless which thing happened, prophylactic antibiotics and antivirals should always be prescribed for ablative laser procedures, both to protect from outside/new infections, and to protect from triggering/spreading infections that may already be present in the system (whether bacterial or viral, which large percentages of the population are carriers for either or both). the skin is the first line of defense against infection, and when it is removed, some other kind of protection (meds) needs to be in place.

i'm obviously no doctor, so take all of this with a grain of salt, but if it were me, (especially if the steroid shot doesn't work) at this point i would see someone who specializes in staph (whether internist, medical derm, or id doc) and get checked out and cultured, if for no other reason than to rule things out.

hope the kenalog shot will work and hope you'll be feeling better soon. sorry you've been through the ringer with this.
Offline barbiegirl  
#13 Posted : Friday, June 25, 2010 7:54:45 AM(UTC)
Rank: Advanced Member

Joined: 8/27/2008(UTC)
Posts: 2,536
Woman
Is this ever going to end for you Bug? Just as soon as you seem to improve from one effect another takes over :(

I saw my dermatologist yesterday and told him about your MixTo disaster and he was absolutely horrified. If this does eventually need to be escalated legally, at least you know you have other medical professionals on your side.

Sending lots of healing and anti inflammatory thoughts your way <3
"My friends, love is better than anger.
Hope is better than fear.
Optimism is better than despair.
So let us be loving, hopeful and optimistic.
And we’ll change the world"

Wear a yellow ribbon, March is Endometriosis Awareness Month!
Offline Bugjune  
#14 Posted : Friday, June 25, 2010 8:22:54 AM(UTC)
Rank: Advanced Member

Joined: 6/29/2009(UTC)
Posts: 4,633
Woman
Location: The leaf I am sitting on
surfgirl: you bring up an excellent point that I need to keep tabs on: IS the staph really GONE? Even the IV and 9-day course of Keflex may have resulted in just ONE bugger remaining. My peeling hands and feet, breakouts and now the rash have all been attributed to staph, which makes me wonder, how long AFTER the staph was supposedly killed could these conditions even develop?! Two weeks? One month? That seems unlikely even to me, no doc myself.

I'm still not getting the feeling that any one single doctor has been able to step back from the microscopic problem of mine he's dealing with to see the BIG PICTURE - the chain of events, the whole story.

I am willing to be a guinea pig to see if the Kenalog and Fluocinonide cream do the trick. I should know within the next few days. If my rash is still here, I think it'd be an excellent step to look around for someone to do the staph culture.

You know, not to sound flippant about my condition, but I am feeling MORE "buggy" every day! And I'm not liking that. I'm morphing into one, big, fat STAPH bug. >:-(
I bug you.

UserPostedImage
Offline MissJ  
#15 Posted : Friday, June 25, 2010 1:45:40 PM(UTC)
Rank: Administration

Joined: 5/14/2008(UTC)
Posts: 26,741
Ya, like Sarah, further up on the thread. LOL

Shaz wrote:
Can somebody up there give Bug a break GEEZ. Hang in there, sweetie...this will eventually calm down. Adding healing vibes, too.
Miss J. Seeing eye companion to the aesthetically blind since 1998.


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