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I DON'T have Herpes! I have "Staphylococcal Scalded Skin Syndrome" Options · View
DCNGA
Posted: Tuesday, June 15, 2010 8:10:22 AM
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Honestly, almost every doctor who ABLATES the facial skin gives antibiotics because, as you said, it is a 'controlled' (not so much in your case) burn/trauma. Skin is missing/gone/not there to protect the delicate tissues it normally protects and puts you at a MUCH HIGHER risk for developing infection/bugs/whatever. I only had my lower lids resurfaced and was given the Valtrex AND antibiotic to begin taking two days PRIOR to the resurfacing. Quite honestly, I do NOT think your doc's behaviour was the STANDARD OF CARE. You really should INSIST that your doc file an 'adverse' reaction with the device maker. If not, you should call them and do it yourself. It does not matter why to them only that it happened. They take this information to develop precautions to distribute to medical providers. I hope you also file an adverse reaction complaint with the FDA about the medical device too. The medical device makers can't be sued, trust me. They are protected by the FDA and the waiver you signed. Your doctor is another story, however.

Sorry, I'll get down off my soapbox on this one. If you ever followed my posts on MMH, you know where I stand on all of this. SIMPLY NOT WORTH THE RISK! You are a healthy person, not at all predisposed to this type of stuff, did your research, and found a doc who you felt was an experienced laser expert, but yet you've had an awful reaction through zero fault of your own. You did EVERYTHING to ensure a good outcome. Lasers/IPL/RF are all a coin toss and no one can predict or know who's going to end up on the bad end of that toss, regardless of precautions.

It think Dr. G has taken the best approach with the silicone mask he has developed. I'm curious if anyone here who's had ablative resurfacing with him was given antibiotics along with the occlusive mask? Seems like the mask would be highly protective of the delicate area.

I wish you continued healing. Your great attitude and positivity will go far in the healing process. You're due for a break, Bug.


DCNGA has left the board and is no longer taking PMs.
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Amber
Posted: Tuesday, June 15, 2010 8:20:56 AM
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Bugjune wrote:
That initial point of infection then enabled the toxin to spread systemically, causing many of the symptoms I had assumed were due to Valtrex

So it wasn't a reaction to Valtrex, it isn't HSV-1...everything has changed!! It must be v disconcerting to find out your doc ph**ked up, and the volte-face of opinions. BUT this is a better diagnosis than HSV-1, cos it's a one-off. Ghastly, yes, but not something you'll worry about the recurrence of.

I will be v interested to hear what your derm says. He is the real expert.
Bugjune
Posted: Tuesday, June 15, 2010 9:00:51 AM
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Surfgirl: good point about the culture! Luckily that WAS done when the skin was really nasty with staph. The PS who did my MixTo had the presence of mind to do a culture way back in May, the day I went in to see him with my fever of 103.7. The results of that culture, which came in a few days later (and I assure you, I HELD MY BREATH hoping it wouldn't be MRSA) showed that it was a strain of staph treatable with antibiotic. My PS had already put me on Keflex by then ... but STILL. The agony of waiting and wondering must've given me another blister.


===========================
surfgirl wrote:
so sorry you have been going through all of this. was scanning your other thread and it seemed there might be a possibility that it may be staph related since you'd had the post procedure staph infection, but saw that you were going to the doc today so did not post a note.

but since you're back from the doc, and you didn't mention a culture, thought it would be worthwhile to ask whether they cultured whatever is left to culture. reason being that certain types of staph are sensitive/suseptible to certain meds and resistant to others, and can become resisitant to certain meds, so there may be a possibility that the keflex didn't get it all, especially since you are still having symtoms. (on the other hand, the continued irritation could just be from all the different topicals that have been used recently. difficult to tell without a culture.)

a culture would allow them to know for sure. it would show whether any infection was still present, what type of staph it is if anything is still there, and exactly what meds would clear it up if needed. keep an eye on your symptoms, both systemic and on your skin. if it persists you may consider a culture because it may need more/different antibiotic meds. always best to know exactly what is going on and how best to treat it (this is true whether bacterial, viral, fungal, etc.).

not trying to worry you, just mentioning this in case it is of any help. good luck and feel better.


I Bug U
Bugjune
Posted: Tuesday, June 15, 2010 9:24:25 AM
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I must've written that paragraph below in my mind 1,000 times. It's the God's truth. And I was looking back on my initial questions to this same PS from a year ago, when I asked him point-blank: 1.) Isn't the MixTo too aggressive for my fair, thin skin? and 2.) Why did you tell me Fraxel was not appropriate for my skin when in fact, it has the least "downtime" (3-4 days) of any of these facial resurfacing lasers? He just extolled the benefit of MixTo's technology: zapping every fifth cell, and the greater variability in settings to ensure a good outcome. In retrospect, it sounds like fitting a device to a patient, instead of understanding a patient's needs and applying the best device to that situation.

In my case, it wouldn't have mattered if MixTo zapped one out of every five cells (as claimed) or one out of every 5,000. The point is, it took only ONE nuked cell to act as a "doorway" for staph to get in. Yes, the other 4 out of 5 cells are not compromised, and they are there to help one recover faster, but that poor, obliterated fifth cell is the problem. Microscopic bacteria would easily get into the body through that opening, and so it did.

There's simply no way to prevent bacteria from being on the face after laser resurfacing. If you applied rubbing alcohol to the person's face, they'd probably die of shock and pain right there. After my MixTo, I was put in a chair in "recovery", slathered with Aquaphor, and cool, wet gauzes were placed on my face. Well, that could've introduced the staph right there: was the water sterilized? How about the hands of the person putting the gauzes on?

I'm going to take my GP's advice to heart and "NEVER get this procedure done again". I will maintain my new skin with lots of sun block and healthy treatment going forward.


==================================
DCNGA wrote:
... You are a healthy person, not at all predisposed to this type of stuff, did your research, and found a doc who you felt was an experienced laser expert, but yet you've had an awful reaction through zero fault of your own. You did EVERYTHING to ensure a good outcome. Lasers/IPL/RF are all a coin toss and no one can predict or know who's going to end up on the bad end of that toss, regardless of precautions.

It think Dr. G has taken the best approach with the silicone mask he has developed. I'm curious if anyone here who's had ablative resurfacing with him was given antibiotics along with the occlusive mask? Seems like the mask would be highly protective of the delicate area.

I wish you continued healing. Your great attitude and positivity will go far in the healing process. You're due for a break, Bug.


I Bug U
Bugjune
Posted: Tuesday, June 15, 2010 9:31:59 AM
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My GP physician nailed it yesterday when he said, "A good doctor knows when to hand off a situation, when it falls in an area outside of their expertise." I feel like my PS means well, but he does not acknowledge when it's time to HAND IT OFF to someone with greater specialization. He was suggesting all kinds of blood work-ups (which hopefully I won't be needing now), and speculating I had first herpes, then candida, but he never insisted that I go see a dermatologist or GP physician.

When I returned to him a week after the MixTo with my high fever, he should've had me admitted RIGHT NEXT DOOR, to the hospital that's attached to his office. Luckily, the nurse who works with him is excellent. She took one look at me, asked a few key questions, and got right to it, hooking up the IV with antibiotic and fluids. Even she expressed surprise that an antibiotic was not prescribed before the procedure was given.

She was my guardian angel that day, for sure. And my hubby, who absolutely insisted I get in to see a doc, unwashed and out-of-it as I was. Bless these two souls.


============================================
Amber wrote:
Bugjune wrote:
That initial point of infection then enabled the toxin to spread systemically, causing many of the symptoms I had assumed were due to Valtrex

So it wasn't a reaction to Valtrex, it isn't HSV-1...everything has changed!! It must be v disconcerting to find out your doc ph**ked up, and the volte-face of opinions. BUT this is a better diagnosis than HSV-1, cos it's a one-off. Ghastly, yes, but not something you'll worry about the recurrence of.

I will be v interested to hear what your derm says. He is the real expert.


I Bug U
surfgirl
Posted: Tuesday, June 15, 2010 10:21:29 AM
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Bugjune wrote:
good point about the culture! Luckily that WAS done when the skin was really nasty with staph. The PS who did my MixTo had the presence of mind to do a culture way back in May, the day I went in to see him with my fever of 103.7. The results of that culture, which came in a few days later (and I assure you, I HELD MY BREATH hoping it wouldn't be MRSA) showed that it was a strain of staph treatable with antibiotic. My PS had already put me on Keflex by then ... but STILL. The agony of waiting and wondering must've given me another blister.


===========================


you may want to ask for a copy of the report. the report should include what infection was present, and a list of meds (antibiotics for staph) with either an "s" or an "r" out to the side to indicate which meds it is sensitive/suseptible to and resistant to (sensitive to which particular antibiotics, resistant to which particular antibiotics, since different antibiotics are used to treat different types of infections). maybe your doc looked at it and saw that it was sensitive to keflex and that you were already on that med so kept the treatment the same.

however, since you are still having symptoms it wouldn't hurt just to make sure that kefelx was one of the meds that would treat it. and it also wouldn't hurt to do a second culture to make sure that the infection is no longer present, and that if it is still present for some reason, what meds would treat it now (sometimes a treatment with a med that doesn't clear the infection can then make the infection resistant to that particular med and then requires another treatment with a different med).

only suggesting these as things you may want to consider because it sounds like you are now pretty far out from your procedure, and still having significant symptoms, and none of the docs have you on any meds to treat those symptoms, and you would probably like to put an end to all of the symtpoms and just be healed. since you have an appt tomorrow you could get a culture and know for sure what is going on and how to treat it. (helpful whether bacterial, viral, fungal, etc., for example, could still be staph requiring more anitbiotics, or the antibiotics could have created a yeast infection requiring an antifungal, or it could just be pimples and irritation from the procedure and rapid regrowth of skin cells which occlude the pores or from the occlusive topicals used as treatments after the procedure, or something else could be going on, just won't know for sure until it's tested in some way, and the correct thing is being treated with the correct meds, etc.)

again, not trying to worry you, just trying to mention things in case they may be of some help. good luck and feel better.
Bugjune
Posted: Tuesday, June 15, 2010 10:58:43 AM
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I could have my GP doc call the PS and get a copy of that culture, altho the PS assured me it was a treatable form of staph. I'm hoping he can READ a lab report, cuz I wouldn't want to leave anything to his imagination at this point. <:(O)

Yes, we shall see tomorrow when the derm doc takes a look! I will ask him about doing another culture - he could probably take a razor and zip off one of my pimply things. I'm totally gun-shy about potent meds now ... but maybe I'm not even allergic to Valtrex after all. I am doubling my probiotics in the interim, too. I have to say, I have a cast-iron GUT. No problem at all with antibiotic for 9 days. I want to keep it that way.

I will be FIVE weeks post as of this Friday. And I have to guffaw with complete cynicism at the brochures I see for MixTo: glowing skin in 5 days! Back to work after the weekend! No one will ever know what you had done, but you'll look great!

You can view the latest 'n greatest shots of me at:

http://www.makemeheal.com/pictures/laser-treatments/bugjune-s-mixto-procedure-a11333 (EDITED TO PROVIDE CORRECT LINK)
Password: BugsMixTo (note capitalization)

Yeah, that's me: poster gal for MixTo!

I Bug U
DCNGA
Posted: Tuesday, June 15, 2010 11:41:00 AM
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The link does not work for me.

I actually think someone has breached emails on MMH. I would change my email on there for anyone who uses them regularly.

DCNGA has left the board and is no longer taking PMs.
She requests that if you wish to e-mail her to use her direct e-mail address which is: laserandiplsupport@gmail.com
stache
Posted: Tuesday, June 15, 2010 11:47:53 AM
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I logged in, then did a search for laser photos. Bug's on the top of the list. Click the avatar then enter the password. Bug even with the redness, your upper eyes look good. There is progress in spite of the complications.
watchthemoon
Posted: Tuesday, June 15, 2010 11:50:28 AM
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Well Bug, I just looked at your latest pics and you do look like you are on the mend but oh what you've been through!!
I think it's great that you're moving on and at the same time your PS owes you big time.Like a free facelift 10 years from now!!!

I went to my primary care doctor a couple of years ago for a Baker's cyst on my finger.She gave me a shot of steroid in the finger and I noticed she rubbed it after and wasn't wearing gloves and didn't use alcohol.A couple of days later I got the most painful infection there.I was going out of down, got some antibiotics and ended up in throbbing agonizing pain for 24 hours until the meds kicked.My finger got so huge and I couldn't move it!
I was so pissed at her that I haven't seen her since, wrote her an angry letter and switched doctors.She of course called and said she had never seen this happen and apologized.Sorry...some things are unforgivable.It's call negligence.

Bugjune
Posted: Tuesday, June 15, 2010 1:21:06 PM
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Ooops! Try this link:

http://www.makemeheal.com/pictures/laser-treatments/bugjune-s-mixto-procedure-a11333
Password: BugsMixTo

I had copied the other URL link after editing my album, and that might have been in a directory that only I had access to.


==============================
DCNGA wrote:
The link does not work for me.

I actually think someone has breached emails on MMH. I would change my email on there for anyone who uses them regularly.


I Bug U
Bugjune
Posted: Tuesday, June 15, 2010 1:28:08 PM
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Yes, Stache, that is a good thing: progress! I have been putting some cool compresses on my eyes the past day, and even dabbing a BIT of OTC cortisone on the red area (my GP said it might help reduce the redness, as that IS inflation), so the redness is coming down even more.

Watchthemoon: I'm glad you gave that doc the BOOT! There are some things that a professional simply can NOT afford to f-up: sterile procedures at the doc's office, in a restaurant kitchen, in operating rooms ... these are the basics. Shame on her for not following those basics and then acting like this was some kind of RARE event! Gross.

I Bug U
DCNGA
Posted: Tuesday, June 15, 2010 2:46:33 PM
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Don't over do the cortisone, it has a 'thinning' affect. Try to get the Biafine when you go to the derm--mine had samples so I did not have to purchase any. It will help.

Your skin looks like it will look nice when all of this is passed. That is a good/lucky outcome based on the hell you have endured. You at least deserve noticeable improvement from it all.

DCNGA has left the board and is no longer taking PMs.
She requests that if you wish to e-mail her to use her direct e-mail address which is: laserandiplsupport@gmail.com
pauluk
Posted: Tuesday, June 15, 2010 4:30:30 PM
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^^^^

yes - might be stressful and have been horible to go through but you will look great..

DCNGA wrote:
Don't over do the cortisone, it has a 'thinning' affect. Try to get the Biafine when you go to the derm--mine had samples so I did not have to purchase any. It will help.

Your skin looks like it will look nice when all of this is passed. That is a good/lucky outcome based on the hell you have endured. You at least deserve noticeable improvement from it all.
Bugjune
Posted: Tuesday, June 15, 2010 5:10:31 PM
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HM! Good point! I'd forgotten about the thinning properties of cortisone. I will ask the derm doc for Biafine. And I also have a tall bottle of 99% pure organic aloe gel. OTC aloe + lidocaine used to work a miracle on any burn I had, but I was afraid to keep applying it with all the lidocaine in it - doesn't that make some folks break out in a rash if it isn't washed off?


=======================================
DCNGA wrote:
Don't over do the cortisone, it has a 'thinning' affect. Try to get the Biafine when you go to the derm--mine had samples so I did not have to purchase any. It will help.

Your skin looks like it will look nice when all of this is passed. That is a good/lucky outcome based on the hell you have endured. You at least deserve noticeable improvement from it all.


I Bug U
surfgirl
Posted: Tuesday, June 15, 2010 7:59:59 PM
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Bugjune wrote:
I could have my GP doc call the PS and get a copy of that culture, altho the PS assured me it was a treatable form of staph.

I have to say, I have a cast-iron GUT. No problem at all with antibiotic for 9 days.


sorry, didn't realize you were still on the keflex. thought you'd finished it and were still having symptoms. also, i wasn't suggesting that the staph you're dealing with isn't treatable with antibiotics, just that specific types of staph require specific types of antibiotics, that's all. and since i thought i'd read that you'd finished the kelflex and were still having issues, it was possible that a different antibiotic might be helpful, or a longer course of the same. sorry for the confusion. hope you're feeling better!
MissJ
Posted: Tuesday, June 15, 2010 9:04:25 PM
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Ya. When the skin is ablated THERE IS NO PROTECTION and a LARGE SURFACE AREA of NO PROTECTION is present and more so than with a face lift which puts the skin back on.

When I got breast implants, they put me on the floor with the BURN UNIT. It was terrible. All those poor burn victims were in a TENT--yes a plastic TENT so no germs floated onto the unprotected skin. These doctors doing ablating need to take it SERIOUSLY that it's a BURN with RAW SKIN exposed and more precautions are needed than just some VASOLINE (Aquaphore is Vasaline water emulsion.)

Makes me think that people are better off with devices or peels that zap layer under the epidermis and keep the epidermis as SCAB thing to dry up and fall off afterwards.



DCNGA wrote:
Honestly, almost every doctor who ABLATES the facial skin gives antibiotics because, as you said, it is a 'controlled' (not so much in your case) burn/trauma. Skin is missing/gone/not there to protect the delicate tissues it normally protects and puts you at a MUCH HIGHER risk for developing infection/bugs/whatever. I only had my lower lids resurfaced and was given the Valtrex AND antibiotic to begin taking two days PRIOR to the resurfacing. Quite honestly, I do NOT think your doc's behaviour was the STANDARD OF CARE. You really should INSIST that your doc file an 'adverse' reaction with the device maker. If not, you should call them and do it yourself. It does not matter why to them only that it happened. They take this information to develop precautions to distribute to medical providers. I hope you also file an adverse reaction complaint with the FDA about the medical device too. The medical device makers can't be sued, trust me. They are protected by the FDA and the waiver you signed. Your doctor is another story, however.

Sorry, I'll get down off my soapbox on this one. If you ever followed my posts on MMH, you know where I stand on all of this. SIMPLY NOT WORTH THE RISK! You are a healthy person, not at all predisposed to this type of stuff, did your research, and found a doc who you felt was an experienced laser expert, but yet you've had an awful reaction through zero fault of your own. You did EVERYTHING to ensure a good outcome. Lasers/IPL/RF are all a coin toss and no one can predict or know who's going to end up on the bad end of that toss, regardless of precautions.

It think Dr. G has taken the best approach with the silicone mask he has developed. I'm curious if anyone here who's had ablative resurfacing with him was given antibiotics along with the occlusive mask? Seems like the mask would be highly protective of the delicate area.

I wish you continued healing. Your great attitude and positivity will go far in the healing process. You're due for a break, Bug.


Can hardly walk. Need hip replacement.
MissJ
Posted: Tuesday, June 15, 2010 9:07:35 PM
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You can put the link to the photos in your signature if you want.


Bugjune wrote:
Ooops! Try this link:

http://www.makemeheal.com/pictures/laser-treatments/bugjune-s-mixto-procedure-a11333
Password: BugsMixTo

I had copied the other URL link after editing my album, and that might have been in a directory that only I had access to.


==============================


Can hardly walk. Need hip replacement.
Bugjune
Posted: Tuesday, June 15, 2010 9:33:35 PM
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Ooops! My bad - I wasn't clear in saying that during the 9 days I WAS on Keflex (from 5/20-5/29) I had no prob. I honestly feel that I am A-OK systemically, but just need to shake these last remaining blisters and outbreak around my mouth and on my chin.

In all other ways, I feel completely normal! Even did my usual routine at the gym today - albeit wearing "Jackie-O" sunglasses! It's a wonder I didn't catch my foot on the treadmill. ;-)

===============================
surfgirl wrote:


sorry, didn't realize you were still on the keflex. thought you'd finished it and were still having symptoms. also, i wasn't suggesting that the staph you're dealing with isn't treatable with antibiotics, just that specific types of staph require specific types of antibiotics, that's all. and since i thought i'd read that you'd finished the kelflex and were still having issues, it was possible that a different antibiotic might be helpful, or a longer course of the same. sorry for the confusion. hope you're feeling better!


I Bug U
Bugjune
Posted: Tuesday, June 15, 2010 9:39:58 PM
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Ye gads!!!! That sounds horrific to be in the burn ward - and those poor, suffering people. I can not fathom how they deal with the pain of raw skin. My uncle spent many MONTHS in a burn ward after he was blown up at the gas pump when houseboating. It's a wonder he survived. Someone was smoking at the gas pump, he yelled out, and ... too late! Ka-BOOM.

It's a coincidence that I had groused to my MixTo doc that he basically sent me back to the hotel with a controlled, 2nd degree burn - something other folks recover from in a hospital! And the GP doc said exactly the same thing to me yesterday.

When I told him my MixTo doc taught seminars on the MixTo device, the GP just guffawed and asked, "Where?" At seminars. "Not at teaching hospitals, I take it." Yeah, that says it all. It's a lot of marketing hype and not enough sound medical practice behind this.

===========================
MissJ wrote:
Ya. When the skin is ablated THERE IS NO PROTECTION and a LARGE SURFACE AREA of NO PROTECTION is present and more so than with a face lift which puts the skin back on.

When I got breast implants, they put me on the floor with the BURN UNIT. It was terrible. All those poor burn victims were in a TENT--yes a plastic TENT so no germs floated onto the unprotected skin. These doctors doing ablating need to take it SERIOUSLY that it's a BURN with RAW SKIN exposed and more precautions are needed than just some VASOLINE (Aquaphore is Vasaline water emulsion.)

Makes me think that people are better off with devices or peels that zap layer under the epidermis and keep the epidermis as SCAB thing to dry up and fall off afterwards.





I Bug U
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