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Genetic Lipodystrophy makes a 13 yr old look 50..video Options · View
violeta
Posted: Monday, June 14, 2010 4:12:01 PM
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I don't know if any of you saw this, from a few months ago. It made me really sad to see how she suffers, and how kids bully her so much, that she had to leave school. Kids can be so cruel. It's easy for people to say just feel positive about yourself, but imagine looking so much older just at 13! It will get worse as she gets older, since this disorder has no cure and even if she got a facelift, she will continue to age and need one again soon.


http://www.youtube.com/watch?v=JCl3f-F4uNY

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"Zara Hartshorn of Rotherham, England often runs into trouble when riding the bus or going to the movies. No one believes she is only 13-years old, and always demands she pay an adult fare. But she really is only 13; she just looks like she's 50.

Zara has lipodystrophy, a genetic disorder that causes fatty tissue underneath the skin to crumble, despite the fact that the skin is still growing. This results in an aged, wrinkly appearance. Only 2,000 people in the world suffer from this ailment, including Zara's mother and her two siblings.

But Zara definitely got it the worst. She is teased and ridiculed at school, telling NBC News that her peers call her "Grandma." It is a challenge to find the courage to go to school everyday, where she fears she will be bullied and beat up.

“I don’t think there’s any way to protect her,” Zara's mother, Tracey, told NBC. “She’s always going to have somebody somewhere that will be willing to pick fun, ridicule her.”

Zara's only stab at a normal life would include plastic surgery to fix some of the skin on her face, but it's definitely out of price-range for her family living on public assistance. "I feel if I have my face done," Zara says, "it will give me some more confidence.” (NBC News)


http://www.bettyconfidential.com/ar/ld/a/Rare-Disease-Makes-13-Year-Old-Girl-Look-Like-Shes-50.html
kosmeds
Posted: Monday, June 14, 2010 5:44:27 PM
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Sculptra would probably help her a lot with less cost and invasiveness.
violeta
Posted: Monday, June 14, 2010 5:59:34 PM
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kosmeds wrote:
Sculptra would probably help her a lot with less cost and invasiveness.


Maybe, but how much Sculptra would it take to fill in the loose skin? I thought Sculptra takes a while to actually fill in volume, and it's not meant for very large areas. But maybe it can work to create more collagen..but I would think she still needs to remove the excess skin.
I know in NYC, it's over a thousand for just a cc or two. She would need much more, and her family lives on govt. assistance so that cost would be too high. Unless it's cheaper in the UK.

According to this article, her mother got a facelift when she was 13 (she's 40 now) and she started to look older in a few yrs again, since the aging continued even worse as she got older.

http://www.mirror.co.uk/news/top-stories/2010/01/25/i-look-like-an-old-woman-but-i-m-only-13-115875-21993085/
MissJ
Posted: Monday, June 14, 2010 10:10:02 PM
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fat grafting would be better if she has fat to harvest. It has stem cells in it.

Can hardly walk. Need hip replacement.
kosmeds
Posted: Monday, June 14, 2010 10:29:07 PM
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[fat grafting would be better if she has fat to harvest]

I doubt she has enough.

[but how much Sculptra would it take to fill in the loose skin?]

A lot. It's what they use on lipodystrophic patients. But she probably does need a lift as well. Her disorder is not only a lack of subQ fat but also looks like an excess of skin combined with inadequate connective tissue. A lot of men in their late 20s have very little subQ fat and marked hollows but they don't have that kind of sagging. So there's more to it than a lack of fat in her case.
mich
Posted: Monday, June 14, 2010 11:01:12 PM
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So so very sad, I hope she ends up getting some probono offers. I can only imagine the intense daily pain her Mom must feel.
yatterman1
Posted: Tuesday, June 15, 2010 12:18:06 AM
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mich wrote:
I can only imagine the intense daily pain her Mom must feel.


Lets think about this logically. This woman knew she had this condition.....and yet she decided to bring a child into this world knowing damn well there would be a good chance the child would have the same condition. I mean she had to know it was hereditary.

If someone has a serious hereditary condition like this....they should NOT bring a child into this world. The responsible thing to do if you have a hereditary condition like this is get sterilized (to just never engage in sexual activity).

Yeah yeah I know "reproductive rights" "women's rights" blah blah blah...none of that justifies voluntarily bringing a child into this world when there is a good chance he/she will have a horrible condition that will cause him/her a lifetime of hell.
MissJ
Posted: Tuesday, June 15, 2010 12:39:07 AM
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Boy, you are insensate.

Can hardly walk. Need hip replacement.
Sarah W
Posted: Tuesday, June 15, 2010 5:38:44 AM
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No I agree with Yatterman entirely.
Larazelle
Posted: Tuesday, June 15, 2010 7:47:26 AM
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yatterman1 wrote:


Lets think about this logically
. This woman knew she had this condition.....and yet she decided to bring a child into this world knowing damn well there would be a good chance the child would have the same condition. I mean she had to know it was hereditary.

If someone has a serious hereditary condition like this....they should NOT bring a child into this world. The responsible thing to do if you have a hereditary condition like this is get sterilized (to just never engage in sexual activity).

Yeah yeah I know "reproductive rights" "women's rights" blah blah blah...none of that justifies voluntarily bringing a child into this world when there is a good chance he/she will have a horrible condition that will cause him/her a lifetime of hell.






Yatterman is right - but the problem is hardly anyone thinks logically regarding life - most people think with their hearts instead of their heads - and then they blame god, fate, life, whatever - You can't put the blame on fate if you don't make informed decisions - life can be quite enjoyable if you are more logical than emotional IMHO -

Hotels in Cleveland
violeta
Posted: Tuesday, June 15, 2010 3:31:48 PM
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While I don't want to judge the mother, since she's had her own problems and still does, due to her condition, I tend to agree that it would be ideal not to have a child if you know there's a high chance of passing down a debilitating genetic disorder. This condition is not solely physical, but it will cause her medical problems later since it appears that all the fat cells in her body are affected, and fat is essential for many functions.
I am not sure how much this woman knew about the odds of passing down the disorder, but she does have two older children with it as well, though not as severe as Zara.
She says she had them with different men, due to bad relationships, most likely due to her own insecurities, as a result of her condition. Maybe her children weren't planned and she wasn't thinking logically. The mother seems to be suffering as well, and has a lot of guilt.
Some people make better decisions than others, and yet some don't even think it through. I feel for the whole family, especially for Zara.
earl25
Posted: Tuesday, June 15, 2010 5:52:24 PM
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those kids at school who tease her need to get a nice a$$ kicking at home by there parents. IMO thats akin to making fun of a kid in a wheelchair.

She will probably get some pro-bono offers but they will probably come from tv docs who just want the publicity.
Sarah W
Posted: Tuesday, June 15, 2010 5:55:07 PM
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Kids are always mean to other kids who don't fit the perceived 'norm'. It is the pack behaviour, sadly. That poor child must suffer terribly. I feel really sad for her.
violeta
Posted: Tuesday, June 15, 2010 6:58:48 PM
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Sarah W wrote:
Kids are always mean to other kids who don't fit the perceived 'norm'. It is the pack behaviour, sadly. That poor child must suffer terribly. I feel really sad for her.


So true. I'm amazed at the level of cruelty though. Maybe it's different in different schools or different areas, but I know kids in some schools who interact with those with disabilities and they have somehow learned to accept them and don't treat them cruelly. There will always be some who are mean, and some who bully. But this situation seems beyond regular bullying, even violent.
I'm also amazed that the teachers/administrators didn't seem to do much about helping her, so kids can leave her alone. I hear my young nieces and nephews talk about how their teacher has told them to respect those who are different (some go to school with kids w/muscular dystrophy or other disabilities, including physical deformities), and not all kids are bullies. I guess it depends on the school and area.
This is a quote from one article about Zara:
......................................
Zara's classmates taunt her, calling her "granny" and "baggy face" and even throw drinks over her and push her over in the playground. But brave Zara does her best to ignore them. "If I can run and hide I answer back then run away, but most of the time I just have to take it," she says.

"Otherwise I'm scared they'll beat me up."

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