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I DON'T have Herpes! I have "Staphylococcal Scalded Skin Syndrome" Options · View
MissJ
Posted: Tuesday, June 15, 2010 9:55:11 PM
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The laser INDUSTRY is just that an INDUSTRY. I get their magazine; "MedEsthetics" and it's just this big COMMERCIAL RAG for DOCTORS. Very little in it is serious with regard to the bad effects of these devices. Just MARKETING HYPE which they get the 'top laser' docs to spout stuff like: "This looks really promising".

As far as I'm concerned, they are ALL sending people home with big BURNS and 'home' aint a place to chill out from a BURN the extent some of those lasers give.




Bugjune wrote:
Ye gads!!!! That sounds horrific to be in the burn ward - and those poor, suffering people. I can not fathom how they deal with the pain of raw skin. My uncle spent many MONTHS in a burn ward after he was blown up at the gas pump when houseboating. It's a wonder he survived. Someone was smoking at the gas pump, he yelled out, and ... too late! Ka-BOOM.

It's a coincidence that I had groused to my MixTo doc that he basically sent me back to the hotel with a controlled, 2nd degree burn - something other folks recover from in a hospital! And the GP doc said exactly the same thing to me yesterday.

When I told him my MixTo doc taught seminars on the MixTo device, the GP just guffawed and asked, "Where?" At seminars. "Not at teaching hospitals, I take it." Yeah, that says it all. It's a lot of marketing hype and not enough sound medical practice behind this.

===========================


Can hardly walk. Need hip replacement.
Sarah W
Posted: Tuesday, June 15, 2010 10:21:18 PM
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Hey all is not bad though. Your skin is starting to look jolly good in the latest pics. Yay! It will soon be a distant nightmare. Thanks so much for sharing your (nightmare)journey with us all. Very special.
kosmeds
Posted: Tuesday, June 15, 2010 10:21:19 PM
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Bug, ask your doctor(s) if you can cease with the ointments soon, especially on your chest. I think a lot of those bumps are from occlusion. My skin rebels when it's occluded; looks like yours is the same way.

Face looks fantastic. I know it took a lot to get there but your outcome is superb!

Now you'd better order some high PPD sunscreen from overseas and a visor with a 5" brim. If you don't maintain your results you'll get an e-spanking.
MissJ
Posted: Tuesday, June 15, 2010 10:43:58 PM
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Maybe a new but TARGETED course of anti-biotics. Some ABs are highly targeted to go after specific strains of germs. There are also anti-biotic OINTMENTS to use that come with a script. If you are going to put an occlusive barrier to skin, it might as well be one with an anti biotic in it.




Bugjune wrote:
I could have my GP doc call the PS and get a copy of that culture, altho the PS assured me it was a treatable form of staph. I'm hoping he can READ a lab report, cuz I wouldn't want to leave anything to his imagination at this point. <:(O)

Yes, we shall see tomorrow when the derm doc takes a look! I will ask him about doing another culture - he could probably take a razor and zip off one of my pimply things. I'm totally gun-shy about potent meds now ... but maybe I'm not even allergic to Valtrex after all. I am doubling my probiotics in the interim, too. I have to say, I have a cast-iron GUT. No problem at all with antibiotic for 9 days. I want to keep it that way.

I will be FIVE weeks post as of this Friday. And I have to guffaw with complete cynicism at the brochures I see for MixTo: glowing skin in 5 days! Back to work after the weekend! No one will ever know what you had done, but you'll look great!

You can view the latest 'n greatest shots of me at:

http://www.makemeheal.com/pictures/laser-treatments/bugjune-s-mixto-procedure-a11333 (EDITED TO PROVIDE CORRECT LINK)
Password: BugsMixTo (note capitalization)

Yeah, that's me: poster gal for MixTo!


Can hardly walk. Need hip replacement.
barbiegirl
Posted: Tuesday, June 15, 2010 10:52:08 PM
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Your skin definitely is looking MUCH better than before Bug! A little pink still, but YOUNG. Hopefully all this mess with infections will be cleared out of your system soon and your body can focus all of its energy towards repairing your skin and building more collagen. I know I have mentioned this before, but I am such a huge believer in the Myer's cocktail IV's- they really made a profound difference after my last surgery by accelerating the healing process. I also couldn't of gotten through an awful and traumatizing combo of virulent H1N1 and strep throat without them; in fact I was consistently getting worse until I got one. Not a cure or a magic bullet, but certainly worth checking out.

"My friends, love is better than anger.
Hope is better than fear.
Optimism is better than despair.
So let us be loving, hopeful and optimistic.
And we’ll change the world."

Bugjune
Posted: Wednesday, June 16, 2010 11:24:22 AM
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Location: The leaf I am sitting on
That IS interesting! Thanks for sharing the info. I just googled the cocktail and came up with these ingredients:

It contains magnesium chloride hexahydrate (5cc given), calcium gluconate (2.5cc), vitamin B2 (1000mcg/cc; 1cc given), vitamin B5 (100mg/cc; 1cc given), vitamin B6 (250mg/cc; 1cc given), the entire vitamin B complex (100mg/cc; 1cc given), and vitamin C (222mg/cc; 6cc given). Solutions are further customized by other doctors.

Like a mega-B + C cocktail. I know when my mom got shingles, she was given a couple of vitamin B injections - it's a great anti-stressor.

I am also doubling my probiotic these days - plus having lots of yogurt and kefir. The gut has 70% of our immune cells, and that's the little army I want to fortify.

I also want to get back to my daily nasal rinse - how I miss it!!! I am just prone to allergy and sinus stuff, and that NielMed rinse is a godsend, bringing me back from the brink of many near-colds. But I dare not do it now, with my lips completely ruby red with raw skin and the last of my blisters fast melting away. Herpes, schmerpes, what a bozo diagnosis that was! I am more convinced every day it was the staph scalded skin. Today I have my derm doc app't ... so I fervently hope I won't EAT my words on the Big-H virus.


=======================================
barbiegirl wrote:
Your skin definitely is looking MUCH better than before Bug! A little pink still, but YOUNG. Hopefully all this mess with infections will be cleared out of your system soon and your body can focus all of its energy towards repairing your skin and building more collagen. I know I have mentioned this before, but I am such a huge believer in the Myer's cocktail IV's- they really made a profound difference after my last surgery by accelerating the healing process. I also couldn't of gotten through an awful and traumatizing combo of virulent H1N1 and strep throat without them; in fact I was consistently getting worse until I got one. Not a cure or a magic bullet, but certainly worth checking out.


I Bug U
Bugjune
Posted: Wednesday, June 16, 2010 11:28:27 AM
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I agree! I was mixing Bacitrcin with my Aquaphor early on ... despite my PS saying that some folks develop a rash and irritation from Bacitracin even!!

But it is amazing the progress I've made in just two days: lip blisters seem gone, I'm just left with new-skin lips - RED, tender! Chin outbreak 98% gone; got one blemish left on my chest, blotchy red face, but hey, I can live with that. I'm going to ask my derm doc if he can recommend some makeup that'd be kind and gentle. Can't wait to hear his diagnosis, too!


================================
MissJ wrote:
Maybe a new but TARGETED course of anti-biotics. Some ABs are highly targeted to go after specific strains of germs. There are also anti-biotic OINTMENTS to use that come with a script. If you are going to put an occlusive barrier to skin, it might as well be one with an anti biotic in it.






I Bug U
Bugjune
Posted: Wednesday, June 16, 2010 11:36:57 AM
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Posts: 2,493
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Location: The leaf I am sitting on
Kosmeds, after trading posts with you on this very topic a few days ago, I took the liberty of STOPPING all that goop. I think my skin also rebelled to NO air! I'd even go overnight without moisturizer on my chin area, where I had the worst breakout most recently. My chest is down to one last blemish, and I don't put any Aquaphor or Bacitracin on that anymore. The GP doc I saw on Monday also said about my skin: leave it alone, stop fussing and cleaning and gooping with it. It's BURNED good, and needs to heal. So I'll administer a real spank if I don't follow orders. :-)

Thanks for the advice on the PPD sunscreen. DCNGA had also mentioned that. Now I need to google it and find some. I'm very happy with Clinique Medical Daily SPF 38, but I don't know if it's got a high PPD. The hat I have, and I even wear it in the car.

Wow, what a journey to the fires of hell and back again.

==============================
kosmeds wrote:
Bug, ask your doctor(s) if you can cease with the ointments soon, especially on your chest. I think a lot of those bumps are from occlusion. My skin rebels when it's occluded; looks like yours is the same way.

Face looks fantastic. I know it took a lot to get there but your outcome is superb!

Now you'd better order some high PPD sunscreen from overseas and a visor with a 5" brim. If you don't maintain your results you'll get an e-spanking.


I Bug U
Bugjune
Posted: Wednesday, June 16, 2010 11:45:45 AM
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Joined: 6/29/2009
Posts: 2,493
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Location: The leaf I am sitting on
It sure is an industry, and the docs just help feed the greedy monster by stuffing patients down its maw, burned raw, as in my case.

That same MixTo doc also invested in the Zerona laser machine. Now I don't want to insult anyone here if you've tried it and like it ... but I asked my OTHER PS (who does my body work) last summer about Zerona. He just said, even tho the multiple laser treatments needed may burst cells open inside and pour toxins into the body and make one look a bit slimmer, it doesn't REMOVE the fat cells like lipo does. Just another gimmick promising instant, perfect results, cheap, quick and easy. There is NO such thing in the cosmetic/plastic surgery realm that I know of that delivers instant, perfect results without some kind of trade-off. If it sounds too good to be true, it probably is.


===============================
MissJ wrote:
The laser INDUSTRY is just that an INDUSTRY. I get their magazine; "MedEsthetics" and it's just this big COMMERCIAL RAG for DOCTORS. Very little in it is serious with regard to the bad effects of these devices. Just MARKETING HYPE which they get the 'top laser' docs to spout stuff like: "This looks really promising".

As far as I'm concerned, they are ALL sending people home with big BURNS and 'home' aint a place to chill out from a BURN the extent some of those lasers give.






I Bug U
MissJ
Posted: Wednesday, June 16, 2010 5:23:20 PM
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Posts: 17,669
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new laser devices enter the market by the minute it seems. Impossible to keep up with and I am circumspect about most of them.

Can hardly walk. Need hip replacement.
DCNGA
Posted: Wednesday, June 16, 2010 6:04:52 PM
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Yes, few if any of the newer lasers have likely ever been closely examined by the FDA as they were 'grandfathered' in and merely had to go through the 501K process with the FDA.

This is from 2008, mind you. There are many more devices than this now approved each year:

Quote:
According to The New York Times, when Congress gave the FDA authority over medical devices in 1976, it allowed a quick review process for any new product deemed “substantially equivalent” to something already on the market. That expedited process became known as a 510(k) review under the relevant section of the law.

In 2007, the FDA reviewed 3,052 devices under the 510(k) process and cleared 2,640 of them. By contrast, of only 41 novel devices required to go through a more comprehensive, evidence based process last year, only 27 were approved.


From a very old post of mine here:

Quote:
Did you know if you or someone you love is harmed by a defective medical device that you cannot sue the maker of an FDA approved medical device, even if the manufacturer admits it was defective!!! The Supreme Court, under Bush, upheld the decision that manufacturers of defective medical devices (level III and level IV devices) cannot be sued if a consumer is harmed as long as the device had prior FDA approval. The rush to market of thousands of devices in the last five years alone is unprecedented! The FDA is not doing its job and their own scientist call into doubt the FDA's vetting of medical devices wtih accusations of corruption.

Please see this article from the New York Times from January:

http://www.nytimes.com/2009/01/27/opinion/27tue3.html

Or here the complaints of FDA scientists themselves:

http://www.nytimes.com/2009/01/28/us/28fda.html?_r=2&emc=tnt&tntemail0=y

http://www.pogo.org/pogo-files/reports/public-health/safety-of-medical-devices/ph-fda-20090218.html

Inspection of labs and facilities have been scaled back in the last several years:

http://www.startribune.com/lifestyle/health/39773107.html?elr=KArks7PYDiaK7DUvDE7aL_V_BD77:DiiUiD3aPc:_Yyc:aUUr

MN doctor questions FDA's test guidelines for medical device:

http://www.startribune.com/lifestyle/health/35938434.html?elr=KArks7PYDiaK7DUvDE7aL_V_BD77:DiiUiD3aPc:_Yyc:aUUr

Bush era Supreme Court ruling protecting defective medical device manufacturers even further:

http://caselaw.lp.findlaw.com/scripts/getcase.pl?court=US&vol=000&invol=06-179

From the Supreme Court decision:

"Held: The MDA's pre-emption clause bars common-law claims challenging the safety or effectiveness of a medical device marketed in a form that received premarket approval from the FDA. Pp. 8-17."


DCNGA has left the board and is no longer taking PMs.
She requests that if you wish to e-mail her to use her direct e-mail address which is: laserandiplsupport@gmail.com
MissJ
Posted: Wednesday, June 16, 2010 8:21:36 PM
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So let it be said that NO NEW LASER IS "SAFE" because the FDA does not check for safety of the new devices.

Can hardly walk. Need hip replacement.
Sarah W
Posted: Wednesday, June 16, 2010 9:21:10 PM
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Joined: 6/4/2008
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Points: 18,304
Scary.....
barbiegirl
Posted: Wednesday, June 16, 2010 10:09:13 PM
Rank: Advanced Member
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Joined: 8/27/2008
Posts: 2,148
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Bugjune wrote:
That IS interesting! Thanks for sharing the info. I just googled the cocktail and came up with these ingredients:

It contains magnesium chloride hexahydrate (5cc given), calcium gluconate (2.5cc), vitamin B2 (1000mcg/cc; 1cc given), vitamin B5 (100mg/cc; 1cc given), vitamin B6 (250mg/cc; 1cc given), the entire vitamin B complex (100mg/cc; 1cc given), and vitamin C (222mg/cc; 6cc given). Solutions are further customized by other doctors.

Like a mega-B + C cocktail. I know when my mom got shingles, she was given a couple of vitamin B injections - it's a great anti-stressor.

I am also doubling my probiotic these days - plus having lots of yogurt and kefir. The gut has 70% of our immune cells, and that's the little army I want to fortify.


=======================================


Yes! I love the Myers cocktail, and usually end up getting extra C (like a lot more) and a little sodium bicarbonate in there too (so it doesn't irritate the vein). Pre-PMS week, I'll get them with an extra dose of Mg which really kills any chocolate cravings in their tracks, lol.

"My friends, love is better than anger.
Hope is better than fear.
Optimism is better than despair.
So let us be loving, hopeful and optimistic.
And we’ll change the world."

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