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Aphrodite, ask about seeing an endocrinologist, too. You might want to test your HPA Axis, i.e., the hypothalmus, pituitary and adrenal gland circuit. High cortisol damages the hypothalmus. Hypothalmus controls pituitary. Pituitary controls the adrenals. The result is your adrenals kick out more cortisol, which not only damages the hypothalmus, but wears out the adrenals, which would make them fluctuate wildly on their own. Not to alarm you, but has anyone ever delivered a diagnosis of fibromyalgia? Well, I'm no doc, but have heard from those who suffer from the condition that it can take years for a specific diagnosis, as the symptoms overlap with various other conditions.
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I thought about fibromyalgia ya Gia and read about it. It's seems the medical community sees it as a hypochondriac disease like Epstein bar virus lol. I believe both are real just not studied enough. I went to an endo last year going to another one. Thanks for the info . Ugh it sucks getting old !
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That is good - pursue all avenues till you find out what you have. At the risk of sounding jaded and ... OLD, I think sometimes the medical community labels tricky conditions as "psychosomatic". Especially if the symptoms overlap with a number of medical issues. It's just easier to say, "It's in your mind, honey ... now beat it!" than it is to tie all the symptoms together, take a detailed family health history, do rigorous testing, and nail it down with a firm diagnosis. As for getting old in general - hey, you still have your teeth dontcha? :-)) (toothless smile) =============================== aphrodite wrote:I thought about fibromyalgia ya Gia and read about it. It's seems the medical community sees it as a hypochondriac disease like Epstein bar virus lol. I believe both are real just not studied enough. I went to an endo last year going to another one. Thanks for the info . Ugh it sucks getting old !
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Chris K, how long were you on Levaquin? Hubs took it for two days and has been unable to run at the gym for almost two weeks now. It's an antibiotic, so I'm guessing you were on a "course" that may have lasted several days? That is some nasty stuff! ============================== [quote=Chris K] i took levaquin once out of sheer paranoia and borderline hypochondria and was left with tender tendons for months. levaquin should only be used for life threatining emergencies
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Bugjune wrote:That is good - pursue all avenues till you find out what you have. At the risk of sounding jaded and ... OLD, I think sometimes the medical community labels tricky conditions as "psychosomatic". Especially if the symptoms overlap with a number of medical issues. It's just easier to say, "It's in your mind, honey ... now beat it!" than it is to tie all the symptoms together, take a detailed family health history, do rigorous testing, and nail it down with a firm diagnosis.
So true! Even the slightest bit of a tricky diagnosis is often labeled as psychosomatic; they hand you a prescription for an antidepressant and push you out the door. It's like they don't even want to try to figure it out. It is so frustrating as a patient. Before my endo was finally diagnosed, I was constantly being told by doctors that it was all psychosomatic and I was just being over dramatic. And yes, this was while in the ER hemorrhaging and passing out from pain. But hey, it only took 7 years to find a doctor who listened and figured it out.
"My friends, love is better than anger. Hope is better than fear. Optimism is better than despair. So let us be loving, hopeful and optimistic. And we’ll change the world" Wear a yellow ribbon, March is Endometriosis Awareness Month!
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so true Barbie !! Im on antidepressants now a very light dose while I feel a little better emotionally its not helping with phyical symptoms. Barbie if you dont mind me asking what was the final diagnosis? Wow you were hemmorging ! I guess it takes for some one to be on there death bed for a dr. to listen !
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barbiegirl, you are lucky to have finally found a doc who listened to you. Did your endo condition run in the family at all? I wonder what tipped the scale to finally determine the diagnosis after all those years of suffering. Glad you are out of the woods on that journey!
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aphrodite wrote:so true Barbie !! Im on antidepressants now a very light dose while I feel a little better emotionally its not helping with phyical symptoms. Barbie if you dont mind me asking what was the final diagnosis? Wow you were hemmorging ! I guess it takes for some one to be on there death bed for a dr. to listen ! It's hard to feel happy when you don't feel well! I was finally diagnosed at age 20 with endometriosis when I *finally* found a doctor who took me seriously and then referred me to one of the top endo specialists in the country. The ER doctors and most GP's that I saw were absolutely useless. They were like "you need a blood transfusion, but its all in your head" which doesn't make any sense at all.
"My friends, love is better than anger. Hope is better than fear. Optimism is better than despair. So let us be loving, hopeful and optimistic. And we’ll change the world" Wear a yellow ribbon, March is Endometriosis Awareness Month!
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Bugjune wrote:barbiegirl, you are lucky to have finally found a doc who listened to you. Did your endo condition run in the family at all? I wonder what tipped the scale to finally determine the diagnosis after all those years of suffering. Glad you are out of the woods on that journey! Yes, my former GP (she left her practice *sob*) and my RE are amazing. No, there is no history of endo in my family at all, however quite a strong family history of Crohn's disease which does appear to be linked to endo. Both are inflammatory conditions. It was basically just finding a doctor who actually listened to me instead of dismissing me. I had many pretty classic symptoms. So many doctors think that teens and young women can't have endo, which is ridiculous because that is often when symptoms start. I wouldn't say I'm out of the woods; I have a diagnosis and have had a ton of surgery but still have severe pain and nausea on a daily basis. I'm considering trying Visanne, which has just become available in Canada but me being the giant ~(:> I am I'm really scared of it. I don't know what to do, but I have to do something because it is killing me.
"My friends, love is better than anger. Hope is better than fear. Optimism is better than despair. So let us be loving, hopeful and optimistic. And we’ll change the world" Wear a yellow ribbon, March is Endometriosis Awareness Month!
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barbiegirl,
does acupuncture or alternative stuff work for something like that?
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I have found Vitamin D really helps mood!
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MissJ wrote:barbiegirl,
does acupuncture or alternative stuff work for something like that? Miss J I have been doing acupuncture every 1-2 weeks for several years now and it does help, but not enough. Same with all the naturopathic and dietary things I am doing... I am positive that they helped increase my surgical interval from 18 months to 4.5 years. So everything is helping but nothing is helping enough to make my insides not feel like they have been put through a meat grinder. :/
"My friends, love is better than anger. Hope is better than fear. Optimism is better than despair. So let us be loving, hopeful and optimistic. And we’ll change the world" Wear a yellow ribbon, March is Endometriosis Awareness Month!
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Yipes, that sounds AWFUL being in pain and nauseous every day! You'd think that with Crohn's Disease in the family it would be no leap of faith to arrive at the endometriosis diagnosis ages ago? Like you say, both are inflammatory. Y'know, if I was you, I would absolutely remove any and all female tissue with that endo stuff on it. I know it's a highly personal decision, but quality of life is key. And chronic inflammation can grind you down, leading to a host of other problems. Doesn't that endometriosis spread beyond the female organs even? Could it develop into Crohn's at some point? You seem very knowledgeable about your options ... but know that you only live ONCE. Make it good for yourself.
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Bugjune wrote:Yipes, that sounds AWFUL being in pain and nauseous every day! You'd think that with Crohn's Disease in the family it would be no leap of faith to arrive at the endometriosis diagnosis ages ago? Like you say, both are inflammatory.
Y'know, if I was you, I would absolutely remove any and all female tissue with that endo stuff on it. I know it's a highly personal decision, but quality of life is key. And chronic inflammation can grind you down, leading to a host of other problems. Doesn't that endometriosis spread beyond the female organs even? Could it develop into Crohn's at some point?
You seem very knowledgeable about your options ... but know that you only live ONCE. Make it good for yourself. It shouldn't have been that hard of a diagnosis to make, or at least a referral to a gyn who might be able to make it as they were obviously too incompetent to do so. Anything they can't immediately figure out must mean it is psychosomatic, right? Not that they need to work on their differential diagnosis skills? Le sigh. My sister had a hell of a time getting diagnosed with Crohn's herself, for years they just told her she had IBS and to stop over reacting. She wasn't diagnosed until she had to have emergency surgery for an intestinal abscess that could have been prevented had she been on the proper treatment protocol prior. Grr. I have had 3 laparoscopic excisions and one mini laparotomy with excision since 2003 to remove all visible disease. My endo is all over the place- but interestingly only from the midline out on the right side. It's been on the right uterosacral ligament, anterior and posterior cul de sac, right ovarian fossa, and just all over the peritonium really. I also had an endometrioma in my right abdominal wall, and some doctors think I know have upper GI endo as well, so I am kind of a medical freak show, lol. But you're right, endo can grow anywhere in the body, including the brain, lungs, eyes, skin, sciatic nerve... There have even been a few cases where MEN have developed it! Hysterectomy isn't a cure, it helps some women with the pain but the endo lesions function independently from the ovaries and don't originate from the uterus. Plus I also want a baby at some point, so it definitely is not an option right now. No, endo can't develop into Crohn's, but intestinal endo can cause many Crohn's like symptoms. ETA: Holy shit, endo has been diagnosed in a live 18 month old baby! How can this be? Endo is a career woman's disease that is caused by refluxed menstrual tissue and doesn't develop until she is in her 30's ;) http://www.ncbi.nlm.nih.gov/pubmed/22123729
"My friends, love is better than anger. Hope is better than fear. Optimism is better than despair. So let us be loving, hopeful and optimistic. And we’ll change the world" Wear a yellow ribbon, March is Endometriosis Awareness Month!
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Wow - that is horrifying about the infant girl with endo. Looks like she may have been of Chinese origin? Makes me wonder how a mom could either pass that predisposition on to an infant in the womb, or if that kind of inflammatory tissue would generate on its own - one in a bazillion chance in an infant. It appears they removed her ovary (or both) and she had an "uneventful" 30 mos post-op. Getting back to you - I hope there is some medication, diet or something that will prevent the spread of that endo tissue.
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